so far so good....2 weeks without TPN

quick TPN-less update:

--labs last week were good. no signs or symptoms of dehydration.

--no weight loss so far.

--no weight gain either, so now we pray he can gain some weight over the next week 

(still at 14 pounds 15 ounces)

--formula up to 40 ml/hr

--doctors are ordering a few tests including an abdominal ultrasound to try to figure out why Ryan's alk phos is so high--all other tests have come back normal and all his liver labs are normal now too...so I'm going out of my way to get these tests done this week.

--so a few more tests and some weight gain and then the Broviac line can come out.  The line's been giving me some trouble lately (like yesterday I had to take an unexpected trip in to the surgery clinic because it seemed to be starting to clot off--they instilled some tpa in the line and it is better now)--so I want it out...like, yesterday.   But of course, we want to make sure he is thriving off the TPN first and we haven't established that yet.

--to help firm up what's in his diaper, so that we can advance his feeds, we have started rice cereal.  he pretty much hates it (maybe it was the princess spoon?).

..so we may have to sneak some in his bottle until he learns how to eat a bit better.  we'll see.