We were soooo excited to finally see "30" for Ryan's hourly rate of formula through his G-tube. We were told by the doc's that he wouldn't get much further than 13ml/hr and here he is 2.5
times that--YIPEE!! We were thrilled at the continuous steady progress.
unfortunately, we increased to 31 ml/hr and were met with too many runny poops and cannot increase his feeds further at this point. I'm super bummed (understatement)--I was really flying high with how great he was doing and to hit this roadblock really sucks. So we are praying that things "firm up" so we can see some more progress. We've been stuck at 31 for over a week now and normally we'd been increasing every 3-4 days. His meds are getting tweaked, so hopefully that will help.
Otherwise, Ryan made some great weight gains since his last visit and they were able to decrease his calories further from the TPN iv again. He is now 13 pounds 10 ounces as of 8-14-09.
1 comment:
that is great news! i will be praying that things do indeed firm up and that you can see that number continue to increase.
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