Crazy schedule

so, we have about a gazillion things to remember to do for Ryan between 6AM, when we turn his g-tube off for the first time, and 12am when we hang up his midnight feeding bag change.  Current schedule, not including regular baby stuff like naps, playtime or diaper changes, this is all just related to his medical / feeding stuff:

6AM-pump off, clean g-tube bag, flush with water, give an hour's worth of formula by bottle

7AM-hang fresh bag of formula and restart g-tube pump feeds

9AM-pump off, give an hour's worth of formula by bottle, clean g-tube site with soap and water

meds: iron, loperamide, vit D, vit A, omeprazole

10AM-restart g-tube pump feeds

12PM-pump off, clean g-tube bag, flush with water, give an hour's worth of formula by bottle

1PM-hang fresh bag of formula and restart g-tube feeds

3PM-pump off, give an hour's worth of formula by bottle, also, disconnect TPN and flush Broviac line with saline

4PM-restart g-tube feeds, take TPN out of fridge, give med: loperamide

6PM-pump off, clean g-tube bag, flush with water, give an hour's worth of formula by bottle

mix 24 hours worth of formula

7PM-hang fresh bag of formula and restart g-tube feeds

clean g-tube site with soap and water

meds: iron, loperamide, omeprazole

8PM-begin mixing TPN (takes 30-45 minutes to mix the meds, prime the line and attach all the connections)

9PM-flush Broviac iv line and begin TPN infusion

12AM-midnight tube-feed bag change with fresh formula

extra bonuses: every other Monday, I draw his blood tests off his Broviac line and deliver them immediately to the UM lab; every Wednesday we do a special scrub and cap change of his Broviac line; every Thursday we remove the dressing on his leg for his Broviac site, scrub his leg and line down with Cloroprep and place a new, clean dressing on the site.

whew! so, needless to say, we need reminders since we have the 2 girls and dinner and the phone and laundry and other "distractions" (normal life stuff) to deal with as well....so, one day (June 27th to be exact) I came home and was using the computer and all of a sudden pops up this lovely thing (very loud, i might add) and i was slightly horrified, but it does show how cute my husband is...in his corny but diligent and adorable way...

So, this alarm goes off 5 times a day to remind us to "...please turn the pump.  back.  on." because we'd forgotten a few too many times.  so, the reminders work but they grate on you after a while.  Caitlin and I did a lot of making fun of daddy for it because, well...you saw it.  i had to post it on this blog so that I never forget.  it always begs for a laugh and it made me smile often while John and Caitlin went on a vacation for 4 days and I was home with the twins and Nana.  Nana laughs at it everytime too.  Anyway, John asked Caitlin to make a reminder (because he was sick of me making fun of him) and she did, it's below and she followed John's lead almost exactly.  She's definitely got the right pacing and pauses.  This one comes on at 4pm now.  the rest of the reminders are still John's (the video I posted above).  I also get a similar reminder to turn the pump OFF throughout the day and to take the TPN out of the fridge at 4pm, it's like John never leaves the house---his weird video is always there to remind me to stay on schedule (love you honey!).  The rest of the stuff we just have to try really hard to remember...speaking of, I forgot to give Ryan his 4pm loperamide...gotta fly...