Saturday, February 20, 2010

One year ago....

(this was written Saturday 2-20-10...I didn't post it until Monday b/c of some issues getting the pictures up)

Feb 20, 2009 was the worst experience of my life up until that point (little did I know there would be worse things to come). The past year has been life changing to say the least--not just because we are now a family of 5, including twins, but because of the way these twins entered the world--the uncertainty, the prognoses, the NICU, the TPN, the ventilators, the surgeries, the emergencies, the NEC. John and I talked a lot over the past month or so about how this day would be---would it be Happy First Birthday, Nora and Ryan or would it be the one year anniversary of the beginning of a time of hell on earth for us? I think it ended up being somewhere in the middle.

I'm really not that sentimental of a person, but this time, this anniversary has been bringing me down. I look at my babies--growing, thriving, miraculous, and I should be celebrating how amazing these guys are--and, believe me, I am thankful and humbled and amazed and filled with gratitude--but, the memories are tough. Many of the worst times are fresh in my head as if they happened yesterday--yet they happened a lifetime ago. I am left wondering if their birthday will ever just be their birthday--a day to celebrate their time here--to celebrate how far they've come and how much they've enriched our lives as individuals. But, so far, on this first birthday, the flashbacks are casting a shadow on things unfortunately. Sure, we said Happy Birthday to them and were thrilled to talk to family and friends who called to say Happy Birthday. And we agree about the amazing strides they've made--I'm not faking the phone call happiness. I'm happy. I'm happy for them, for us. I'm thankful to God to our friends and family. But it doesn't feel quite like a birthday should for me. I feel like they are getting ripped off to some extent b/c of all the memories--they don't know it but I do. And please don't let my weirdness prevent any Happy Birthday wishes to them--I'm not falling apart about it or anything, I promise. and THANK YOU for all the birthday wishes and celebratory emails, phone calls and hugs--We all appreciate it.

So, today I planned a really fun day for John--a surprise poker night with a few buddies. Planning kept me busy and it also felt like a little bit of a redemption for John's lost birthday last year when we were praying for Ryan to turn a corner for the better after a series of bad reports from the neonatologist--we had nothing to celebrate last year. and I also blew it on Father's Day 2009 for the record. So, John is currently playing poker with some of his buddies--I hear laughter, I see friendship, I see John smiling. It is a good day. Next year we'll have a party for Nora and Ryan--hopefully there will be much healing of our spirits in between now and then.

In the meantime...here are my one-year olds. i guess. they sure don't look like one-year olds, but they are doing great things. They are both getting all over the place--Nora rolling and scooting, getting up on her knees and revving up to crawl soon, even taking a "step" with her arms here and there--Ryan moves by rotating in a circle on his belly and thrashing his legs around which sometimes throws him forward, sometimes backward--on the kitchen floor, he looks like an accomplished breakdancer.








Monday, February 1, 2010

my sunday

John took Caitlin to Sesame Street Live (thank you Grandma Joanie and Grandpa Buddy!) for her birthday....I complained about not getting to go. a lot. But, I did get to spend the day with these precious gifts. Nora's just learned to clap and is pretty impressed with herself. Ryan's a seasoned clapper but has become a bit of a jumping bean in the exersaucer. enjoy!

Sunday, January 31, 2010

Caitlin's birthday








Thanks to so many friends and family members for making Caitlin's 4th birthday so special!

Thursday, January 21, 2010

Food.

Nora's doing all kinds of busy big baby activities these days. She just figured out how to feed herself little bits of cereal...


She will not take a bottle herself, but loves to steal Ryan's bottle...which he basically refuses to drink anyway....

Speaking of Ryan's bottle...we are dealing with some trouble with him accepting food and formula by mouth. We are seeing an occupational therapist weekly and she has him doing some gum brushing before we feed him solids with this crazy brush, but he likes it.
She also had me try giving him these crunchy foods, which he accepted happily once. once. and from then on, even though he can feed himself, he hasn't taken anything. She thinks he has a sensitive gag reflex and a little bit of consistensy / texture / sensory issues with food that make him not like it (the gum brushing is supposed to de-sensitize this). I'd really hoped that once he learned how to feed himself, he'd go for it, but that's not turning out to be so. It's pretty exhausting trying to transition off the gtube feeds when he won't take much by mouth. And the colds and runny noses he's been getting one right after another haven't helped much either. So, I'm looking forward to spring.

Tuesday, January 12, 2010

Caitlin


PUTTING HER TO BED we always go back and forth about who loves who more. The other night went like this:
Me: I love you up to the moon
C: I love you up to the stars
Me: I love you past the stars
C:...(thinking)...I love you paster the stars

TWO NIGHTS AGO:
She has been imitating her Grandma Mary by singing and playing her piano at the same time. Here she was doing her own worship. I was bustling around the kitchen at the time, and didn't really hear all the words, but i did hear "JESUS IS OUR OWNER" at one point. John grabbed the camera and we got this little bit only...


She has been loving to write and draw lately and was very proud of this family drawing



Back in Business

We finally got our camera back and it's working--the babes have really gotten bigger and stronger in the past 3 months of being camera-less.
We assembled our new stroller and everyone wanted to try it out....as usual, Ryan is having a ball and Nora is skeptical.



Ryan is finally loving his bath, so we are having fun taking baths around here--we got all 3 kids in the bath together yesterday, of course Caitlin is at an age where she is intentionally left out of these...



After bath...sad attempt to get a picture with all three kids in their jammies--Nora uncooperative, Ryan distracted, Caitlin lollygagging until Ryan finally fell apart, then I got a decent one with my girlies only.



..and they're still bald.  and this picture totally cracks me up.


In other news, Ryan had a bunch of appts over the past week: 9 month well visit, intestinal rehab clinic, developmental clinic--all NORMAL AND IMPROVED!  He's doing awesome.   Nora's also doing well--got a big fat "normal" on her evaluation at the developmental clinic and we have her well child visit tomorrow, so hopefully that is uneventful as well.

Sunday, January 3, 2010

NO CAMERA and brief updates

there is a lack of cuteness on this blog recently because our camera is at the Cannon Repair place...i hope....and coming back to us soon.  so that I don't forget: Auntie Joanie taught Ryan how to clap over Christmas and he hasn't stopped since--will get a video if I ever get my camera back b/c it's awfully cute. He is basically sitting up now too, just needs a pillow behind him for when he gets mad and throws his head back.  Nora is waving and rolling both ways now--she is really motivated to feel every little thing she sees, so I think once she gets more mobile, we'll be in big trouble.  

Caitlin's going back to preschool starting tomorrow, which she's been begging for since she left in the spring.  Just 2 half days to start, so hopefully all is easy with this transition.  We've been on a nanny hunt for the past week since the au pair situation didn't work out.  In the past 3 days we interviewed 3 good candidates and hope to have this part figured out within the next couple of days.  We are hoping for a less stressed 2010!